How Your Tax Deductible Contribution Will Help:
We are committed to using funds in the most
meaningful ways. Our spending includes:
-Subsidization of seizure detection devices for
families who can not afford them.
-Outreach and partnership with neurologists,
epileptologists, and others in the medical
community to determine the most effective ways to advance awareness of Sudden Unexpected Death in Epilepsy (SUDEP).
- SUDEP awareness and outreach in the form of
informational and educational materials, presentations, and participation and sponsorships at epilepsy/SUDEP events.
-Funding research and trials for seizure
detection and seizure prediction technologies that may assist in preventing
deaths caused by seizures, and assistance to developers of the most promising
technologies with funding for FDA approval process.
-Funding of clinical trials that produce
scientific data on seizure alarm devices.
-Funding SUDEP medical trials in hospitals.